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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Thank you Mike, Abby, Kathie, and 4-eyes for the replies! I appreciate it!
![]() Mainly I am just wondering if the specific walking problem--having to stop and rest a minute after just a very short distance--and then able to walk again though more slowly after a short rest--is that typical of MG?? That is the only problem I am taking up with doctors again. 4-eyes: I have had MS investigated PARTIALLY and was once told I had it, then shuffled off. So I've spent plenty of time on MS forums. ![]() The last neuro I saw, 2 years ago, had no interest whatsoever in finding out what was wrong and was half stupid, so I would love to get a GOOD neuro but I don't know yet. First I have to convince my regular (new) doctor that my past workups were NOT sufficient. Kathie, actually the ghosting that I get after reading (or just from being very tired) does NOT go away when I cover one eye. It's in each eye separately. So it's something weird. I saw eye specialists but no explanation, just glasses, but they do help. Thanks much for the recommendation to see a neuromuscular specialist at a teaching hospital. There is nothing I would like better! The problem is getting there--and getting believed, when your symptoms are atypical or you have symptoms of possibly more than one problem and have already had some partial workups over a long period of time. Doctors just assume you have a "functional" problem. But I am 56 years old and I have had to think hard about my life recently and I just cannot go on with this stupid unexplained inability to walk more than two blocks--it's idiotic. Thanks everyone!! |
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