I am having a really bad week. The MG weakness and fatigue is so bad. I went to Joanne fabrics to buy fabric for my MG Awareness quilt, when I came home I had to take a 4 hour nap to recupperate. Desert ended up on the floor again. I hope this is not how it is going to be all summer with the heat.
kathie

Whirlwind, you said just exactly how I feel. I'm tired of feeling this way, I'm tired of having to explain to people in the medical community what Stiff Person Syndrome is, and I'm tired of not being able to do the thing that I love which is playing in the dirt - working in the yard and having way too many potted plans around our back patio. And I can't even do the thing that I hate to do which is housework.

And most of all I feel guilty for feeling this way when I've seen people with true diplitating illnesses.

Somedays it's just too much to handle. I'm tired of being tired.

Southern Bell

I say I am tired of being tired too........