Hi everyone - as some of you know I am new here and have been having fluctuating symptoms for 9 years and despite MG being suspected after the AChR test it was ruled out....twice! I am now on Neuro#2 and finally having further tests and currently awaiting nerve/muscle tests for my face......To be honest I am dreading them as I know these tests seem a little hit and miss at the best if times and whether these tests confirm my new Neuro's strong suspicion that I do have MG, I think, at some point in my life I will be diagnosed with it, like my Neuro said - There is nothing else it could be!

However, I am we'll aware that this road is anything but simple and you have all helped, supported and educated me with your experiences which, in all honesty, leave me baffled! How can some of you be diagnosed by one Dr and then have another Dr take the diagnosis away? I have read your ER stories and the horrible treatment you have received, some of you during a crisis?! I have never heard of another medical condition where such scrutiny is placed on the diagnosis - mainly through ignorance from what I can see?! I have 2 brothers, one with diabetes and one with nephrology and epilepsy and if one them needed medical assistance to then be challenged or ridiculed as some of you have been I would be appalled and I am sure the medical system would support me - so why is MG any different?!

Sorry to rant but the fluctuating, debilitating nature of MG is cruel enough without this to deal with! Your stories and my own struggles have left me curious and I wanted to ask - how many of you are actually diagnosed and by what test/method (if you don't mind me asking) and also, has anyone had their diagnosis removed and even reinstated again??

I hope you all don't think that I am being nosey - I am just curious and a little sad that we are all going through this AND having to fight for answers and help.....the fight takes up so much of our precious energy that could be far better spent on the things we love in life!x