[cait24]

Well, Initially I did very well on pregnisone, with very little side effect. All my pain went away, I had stamina and strength that I had not had in over a year. When I got down to 25mg, all the symptoms came back strong. I start IVIG on Monday and will be out of work for 8 days.

SInce it is MG awareness month, all my MG symptoms were back and I heard a few mumble of co-workers making the wrong assumptions about my condition, I decided it was time to tell the truth. I asked my bosses permission and hung up a bunch of MG poster printed off the internet. My boss called a departmental meeting and I explained to my dept (15 people) that I had MG and what it is. They asked alot of questions, and I answered them frankly. I also asked them to spread the word to my division so co-workers were no longer making the wrong assumptions.

I feel I had to do this and I am relieved that I no longer have to hide my symptoms or pretend I am fine. I am sure that there will be individuals that will still circulate rumors or provide misinformation, but I think I made the right choice.

I bought an MG awareness bracelet off of Etsy and wear it all the time. My daughter asked me to get her one too. I guess I realize I am not going to be one of the easier cases that respond well. So I need to embrace this.

kathie