Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 07-15-2013, 05:35 AM #10
rach73 rach73 is offline
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
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Hiya,
I just wanted to chime in - even though I'm undiagnosed. Tomorrow is my neuro opthalmologist appointment.

I couldn't even look at the pics you put on here as my eyes couldn't cope with it. My vision is awful at the moment double vision, blurring, ghost images, wavy stuff, my peripheral vision jumps up and down. So I get what you are saying completely.

Have you had your b12 levels checked? When my levels are low I get numb or tingly hands and feet. To top my levels up I use solgar liquid b12 drops. You put it under your tongue twice a day. My symptoms of numb or tingly hands and feet disappeared within a week. Its worth giving it try but get drops or sublingual tablets as sometimes your stomach is what's causing the b12 in your diet not to be absorbed.

A good website is called b12d.org sorry I couldn't insert the link my nexus wasn't playing ball. This lists the symptoms of b12 defiency and its much more common than you think.

Don't give up,

Rach
__________________
Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.

My blog address is
.

.


Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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