Hiya,
I just wanted to chime in - even though I'm undiagnosed. Tomorrow is my neuro opthalmologist appointment.

I couldn't even look at the pics you put on here as my eyes couldn't cope with it. My vision is awful at the moment double vision, blurring, ghost images, wavy stuff, my peripheral vision jumps up and down. So I get what you are saying completely.

Have you had your b12 levels checked? When my levels are low I get numb or tingly hands and feet. To top my levels up I use solgar liquid b12 drops. You put it under your tongue twice a day. My symptoms of numb or tingly hands and feet disappeared within a week. Its worth giving it try but get drops or sublingual tablets as sometimes your stomach is what's causing the b12 in your diet not to be absorbed.

A good website is called b12d.org sorry I couldn't insert the link my nexus wasn't playing ball. This lists the symptoms of b12 defiency and its much more common than you think.

Don't give up,

Rach

I've had everything checked you could probably think of. Just MG and low vitamin D so far. I have to wait to see a neuro muscular specialist at Mayo which could take 2months.

Hiya,

Have you got the actual report for your b12 level's? If you go to the website it will show you that what the UK see's as an acceptable level of b12 actually is a lot less than what the body needs.

I don't know what the level is in the USA is but it will probably be around the same as the UK. Here the b12 charity is trying to get it raised as people are suffering from peripheral neoropathy and its being left so long it can't be reversed.

Good luck with the Mayo clinic

Rach

I will post the B12 levels when I can locate them. I have a huge folder of all of my medical records. Mayo called me today and instead of waiting until October they're getting me in on 8/20 now which is really nice. They are going to repeat the single fiber EMG and look into some other things that may contribute to my problems. Last time, I didn't have an abnormal test but I really believe this is going to come back positive because my entire body is weak at times and my muscles strain/tremble if I over do it. This goes away with rest. I've upped my Mestinon does and I have seen improvement with my energy level, but it doesn't touch the vision and all of the weakness. I guess at 27, if this is the MG kicking my butt and making my eyes off constantly, I'm worried about progression/recovery. I'll have to see what they say.