Quote:
Originally Posted by lojos
That is what the neuro called my weakness.I have never fallen over but when I am tired I cannot lift my legs up off the bed, I can't walk on tiptoes or heels, my legs are just wobbly. Weakness is in the arms jaw oesophagus and ptosis.I was put on Imuran but when I saw another neuro he thinks it is fibro so I haqve come off the Imuran. He saqid mky pattern of weakness does not fit MG.
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Please try to see a neurologist who specializes in neuromuscular diseases. If you have ptosis, see if you can find a neuro-ophthalmologist. You should have your blood tested at least for AChR, MuSK, and LEMS antibodies. If you test negative for all three, you should have a single fiber EMG. From what I've read here over the last two years, the "pattern of weakness" in MG is very highly variable. Some people call MG "the snowflake disease" because it is so different from patient to patient.
Abby
07-17-2013, 09:11 AM
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