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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-17-2013, 08:54 PM
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Did you see a neuromuscular specialist that has a lot of experience with MG? Please see the MG of Australia link. They have an MG clinic in Sydney. If you do not feel your treatment is effective, I would try the MG clinic.
http://www.myasthenia.org.au/html/news.asp. Unfortunately, MG is so rare that unless you go to a neuromuscular specialist that sees it all the time, patients often go undiagnosed or misdiagnosed. I hope you have find your answers, kathie |
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07-17-2013, 09:13 PM
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Yes a couple of them were neuro-muscular specialists. If it is fibro it doesn't explain the ptosis ,the difficulty swallowing when I am tired, and the difficulty in not being able to walk more that 50 metres with leg weakness and breathlessness. My oxygen rates decrease significantly after 2 mins.
I have day and night sweats and have 2 nodules that are monitored every 6 months as I have had breast cancer twice. I aalso have orthostatic hypotension. |
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