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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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It is possible to have all the symptoms of MG and it really be caused by a bunch of different issues. It doesn't seem likely though.
It looks like a duck? It quacks like a duck? It is likely to be a duck. Or MG.
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Celeste |
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"Thanks for this!" says: |
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#2 | ||
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Junior Member
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Probably the best choice here, if your insurance allows, is to get to a neuromuscular/MG specialist. You will generally find them at large teaching hospitals. You may need a referral from your neuro-opthalmologist, as these specialists are often hard to get an appointment with.
My thought is that you try to set up an appointment with the neuromuscular/MG specialist on your own - which may be a wait of several weeks or even months, so that you have it in place in the event that the neuro-opthalmologist's findings are still inconclusive (decreases your wait time). If you need recommendations for a specialist, just ask the people in the forum if they know of one in your area of the country. |
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"Thanks for this!" says: | Online User (08-09-2013) |
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#3 | ||
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Junior Member
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My neuro-ophalmologist is at a large teaching hospital, in the department where someone recommended a college as being tops in the MG field. The neurologist who did my SFEMG is also a part of the teaching hospital staff but works out of one of the hospitals and sees "difficult" cases he said, for my neuro-opthalmologist. My N-O seemed very highly regarded by the neurologist. I have also seen 4 different residents working on neurological specialties before seeing the teaching doctors. My appointments are typically 2-1/2 to 3-1/2 hours long, with very little time waiting except when the residents are talking with the doc before he comes in. The SFEMG took 2-1/2 hours as well.
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