[Stellatum]

Hi, everyone. I'm curious. I have typical myasthenia symptoms, but also sometimes "spells" of weakness that last about half an hour. I've talked about this here before. Here's the thing: I can often feel these episodes of whole-body limpness coming on, and I'll be darned if it doesn't feel exactly like an alcoholic buzz--not in my head (I'm not light-headed or dizzy) but in the rest of my body, especially my arms and legs.

Does anyone know what I'm talking about?

Thanks! I have been very strong for the last two months, but my symptoms are back. This is what happened to me last summer, too: I got strong in the spring and weak again at the end of August. I don't know why.

Abby

[4-eyes]

I do that! It's almost as if I'm in another world or "level of being." It's kind of bizarre, and does feel like I am intoxicated, with a "heavy, jelly-like" feeling. I get most of the symptoms in my face and neck, but have also experienced it in my limbs.

Sorry you are flared. I have found that I have certain times of the year that "flare" as well. September/October are historically bad months, along with late spring. I have other MG friends who have noted the same thing. Even since the reboot, I will have some breakthrough symptoms.

Feel better soon!

[N2Mischief]

Abby, My symptoms get much worse in the summer. I relate it to the heat. I have pretty mild symptoms most of the time, and have had them for quite a few years and never bothered to do anything about it. Then last summer it got hot and humid and my symptoms worsened to the point of being scary. I finally saw a neurologist. I have good weeks and day, and bad weeks and days, but I have noticed this month the symptoms are much worse again.

[Juanitad]

My theory is that this weakness is related to pollen counts. I think my immune system is trying to fight all the pollen that is produced in the spring and fall and it kicks up a relapse in my mg also. At least, that's my theory!

[4-eyes]

I tend to agree with you, Juanita. Ragweed season just began in my area, so let the fun begin!

[bu452000]

I too get the buzz. Can be having a fairly normal day and out of the blue my legs will get very week and I will feel like I am going to fall over. Actually did fall over once. The joys of MG.
Al

[Stellatum]

Thanks, Al. It's like that for me: I have steady mild weakness all day, but I get spells of more severe weakness, like you say, out of the blue. They come on suddenly. I go limp, and if I'm not paying attention I end up on the floor (or at least in a squatting position). My neurologists say that to get sudden spells like this is "not typical" of MG. During these spells I find it hard to even sit in a straight-back chair. I have an Adirondack chair that I use for the dinner table if I have an episode while we're eating (because I tend to get these spells around dinner time--and as far as I can figure, blood sugar has nothing to do with it. I get the spells at 5:00 whether dinner is at 4:30 or 5:30, whether I've been fasting or snacking all day. And I never feel light-headed or dizzy--just limp).

Abby

[bny806]

I have the same spells.. in fact due to those spells I am always wondering if I have something systemic going on, like an endocrine issue or something... I have wondered if I had addisions disease or something .... It's awful.. and my muscles feel buzzy, or vibrating or something strange!

Have you looked into periodic paralysis - hyperkalemic and more... I am going to have my dr test me more for addisons and other systemic illnesses.. I have had a cortisol level checked once.. but i have an odd sleep schedule, so not sure if that messes up the results or not..

[Stellatum]

Yes, I've looked into hyper- and hypokalemic periodic paralysis (I'm seronegative, so I sometimes doubt my MG diagnosis). I have never been able to find a trigger or any relationship with what I eat, though I understand that's tricky (evidently HKPP triggers can cause reactions that are delayed by hours, so it can be hard to connect the dots). Also, I have typical MG weakness through the day in addition to these more intense spells. But what made me really set the question to rest was that the MG specialist who diagnosed me said that my SFEMG was strongly indicative of MG, and that HKPP wouldn't cause those readings.

Abby

[ginnyb45]

i have periods of vertigo and flickering vision.. just ended up in ER ..ct scan looks fine.. the whole world spins its so scary!