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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I have been using a c-pap machine for the last few weeks, and went in to get it changed as I was having trouble breathing out against the constant pressure.
The lovely lady in charge listened to me, then decided to change the c-pap, from I think cflex to aflex, I can't be too sure about this, as I'm new to it all its all very confusing. Well the change over worked wonders for a few days, no probs breathing out. Now I'm noticing I'm having trouble breathing out, and not wanting to use it because its so tiring, so havn't been. I was wondering if anyone knows about the difference between the 2, and just how bad do you have to be to try out a bipap machine. I see my specialist in March, he is a consultant physician, I see him for out of the ordinary things, like my not sleeping well and waking tired, and would like to go to see him full of information, he is willing to try things out, and willing to listen, but I don't want to look like an idiot. Sorry its a long post, and thanks for reading it. Kate
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