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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Member
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How many of yall have done repeat loading doses of IVIG after a while? It’s been 2 years since I had my loading dose and I go every 3 weeks now.. should probably be sooner, but it’s hard to do it every 2 weeks.. In the beginning IVIG made a HUGE difference, it was amazing, and now it helps, but not like it used to – would a loading dose help “boost” it all? Thanks and I Hoep everyone is doing well!!
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#2 | ||
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Member
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I've done it in the past, but an increase in the maintenance dose seemed to work better.
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#3 | ||
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Quote:
Note i get octagam 5% (since dec 2012) takes 9 hours each of 2 days every 3 weeks and have not had any significant side effects. |
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#4 | ||
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Junior Member
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I go 2 days every 2 weeks, ( get 85 on day 1 and 80 on day 2) never do see any difference or improvement, but they tell me I must go..
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