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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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What do you mean by "working you up to these levels?" Is there an issue with working up too fast? Or taking too much too soon? Jen |
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#2 | |||
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Member
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H Jen - Mestinon does have some side affects for some people. They are generally not permanent, but they can be uncomfortable for a few hours. For me, if I take it closer than 3.5 hours apart, it affects my GI tract with horrible cramping and diarrhea. If I keep it about 60 mg every 3.5 to 4 hours, I don't have those problem. However, as with everything else with this disease, it is different for everyone. I do use the 180 Timespan at night and if I somehow forget it (senior moment!), I really notice it the next morning. I can hardly get out of bed and will delay my shower until my morning mestinon takes affect.
Good luck with finding what works best for you! Juanita |
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"Thanks for this!" says: | bizzymum42 (10-08-2013) |
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