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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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Hi All -
After a lukewarm response to Mestinon my dr put me on 5 months of high dose steroids. It was amazing and brutal all wrapped into one. My eyes worked brilliantly, my speech was perfect and, of course, I had boundless energy. On the flip side, I had multiple staph infections, raging thrush in my throat and mouth and a truly outrageous moon face. Thankfully, I successfully tapered off in July (a brutal process) but my face is STILL enormous. With all of the other difficulties MG presents I can't believe I care so much about my face but as a young woman I do. Has anyone seen moon face not reverse? It has been 3 months without ANY steroids and it is still very big. I am really thin so the juxtaposition makes it worse. I'm losing hope. I would love any feedback specifically related to moonface and if it took u a long time to reverse. Thanks so much in advance. ![]() |
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