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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-06-2013, 09:44 AM | #1 | ||
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I get mine at home, and have for over a decade. It's so much easier to have everything you need at your fingertips. I also think it's a lot safer as far as infections go.
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"Thanks for this!" says: | Needananswer (11-06-2013) |
11-08-2013, 12:01 AM | #2 | |||
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I start IVIG on Monday, for 5 days, They are trying gammunex this time. gammagard gave me a bad reaction. i will let you know how it goes.
I am up to 120mg x4 of mestinon and 180 at night because of breathing issues. The neuro does not think it is safe to raise the mestinon any higher. kathie |
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11-08-2013, 12:29 AM | #3 | ||
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Good luck next week!!! I can't remember the brand I initially used (I want to say it started with an I).. but I now am on gammunex and have much better luck (no skin rashes, blisters on my hands and less frequent AS - as long as I control the rate)..
I hope it works well and boosts you back up! |
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"Thanks for this!" says: | cait24 (11-10-2013) |
11-13-2013, 11:19 PM | #4 | |||
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Thanks, everyone, for the great feedback. I see the neuro later this wk and will make a firm decision.
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11-13-2013, 11:28 PM | #5 | |||
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I just finished day 3 IVIG with Gammunex and I am feeling wonderful - no side effects at all! I am amazed at the difference, 2 more days to go!!
kathie |
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11-14-2013, 06:16 PM | #6 | |||
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11-14-2013, 11:13 PM | #7 | ||
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Wonderful news!!! So glad your feeling well - isn't it amazing what it can do!??? and great ou haven't had any ill effects from it too!
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