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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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New Member
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No, I've never had an LP. What is that used to diagnose?
I'm sorry to hear that your breathing got so bad you had to have a hospital stay. That's the one thing that really concerns me (and I think that's what convinced the neuro to re-run the tests)... I've had breathing issues and I'm so afraid of being home alone with my young kids and having my breathing get really bad or stop! It only got bad enough once for me to go to the ER, but by the time I actually decided to go and then waited to be seen, my breathing regulated again. Scary stuff! |
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#2 | ||
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Member
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oh yes... been there.. when my hubby would go out of town, I would tell him he needs to call first thing in the morning and if I didn't answer to have someone come to the house.. I didn't want to be dead and my two babies in the house without anyone.. it was scary.. it's hard to imagine being that way now... it's like a bad dream!
LP is usually done in people with "mystery" muscle weakness/neuro symptoms it can help diagnose MS, neuropathies like CIDP/GBS, lyme, other weird neuro stuff.. how have you been feeling? my respiratory weakness comes and goes as well.. when I crashed it was about a 3 day period that I was losing ground big time.. I couldn't even suck a straw, purse my lips or anything.. I did the Pulmonary function testing and almost passed out barely getting it to 70.. couldn't read a book to the kids- every few words I would huff and puff to breathe.. it was crazy! Hormones majorly affect my symptoms- do they with you? |
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