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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I have been on this website before getting information on B12 defieciency. I have pernicious anemia and have found alot of great info on this and the braintalk forums however, since diagnosis of p.a. my levels have increased significantly over the past two years and are now way above the normal range. My neurologist has said that I probably have perminent central nervous system damage from B12 going so long undiagnosed, but in January I had a lumpectomy and radiation therapy for breast cancer and since then I have taken a downward spiral with my health.
Last month the neuro sent some blood work to the Mayo clinic. Not sure what tests were run but all came back normal. Yesterday, went back and he has sent out more blood work and one is an mg panel. After reading online about this disease, some things really sound like me while others not so much. Here are some of the symptoms I've been dealing with the last two years: extreme fatigue muscle aches/spasms hoarseness/complete loss of voice tightness in chest/ breathing strained alot of times but not to point of danger migrane headaches brought on by weakness in neck (sometimes I feel like I just can't hold my head up) can't make it through Wal-mart, have to ride in one of their scooter chairs light-headed/dizzy, can't step up on step stool or doctor's scale without dizziness blurred vision I have some days where I feel fine(maybe 1 or 2 a week) almost normal and others where I feel like I've been run over by a mac truck There is more but these are the most significant. I know that the B12 def. is responsible for some of my problems, but can't be attributed for all of them. Does this sound like mg or am I just grasping at straws? Thanks, Jackie Last edited by jackieinbama; 05-16-2007 at 02:54 PM. |
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