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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Senior Member
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I'm sorry, I can't remember if you tested positive for the AChR antibodies. If not, you should be tested for LEMS (Lambert Eaton Myasthenic Syndrome), because I've read that it sometimes acts this way. I suppose that even if you're AChR-positive, you might as well get tested for LEMS as well--I know that sometimes people have more than one type of antibody. But I think the Mary Walker phenomenon is a good guess, too.
Abby |
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#2 | ||
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Guest
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Thanks all!
I do not really understand this Mary Walker phenomenon. Can someone explain it to me? abby, yes I was tested positive for achr (and musk), not sure if I was tested for LEMS though. |
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#3 | |||
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Member
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I also wish that I could understand the Mary Walker phenomenon. I understand it to mean that when you use one muscle excessively, all the others turn to jello as well. I just can't understand why.
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Celeste |
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"Thanks for this!" says: | anon6618 (12-21-2013) |
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#4 | ||
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Guest
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Quote:
Oh but that's something familiar. When calling (talking) not only my mouth and tongue get tired, my eye closes too. When walking, I do not only get a funny, drunk walk and jello legs, I also get a weak diaphragm. |
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