Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

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Old 12-22-2013, 04:59 AM #1
anon6618
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Thanks Joe! So much.

Some signs against it, I
-surely do have MG. I do have the antibodies.
-have tried 3,4 dap which is the medicine used for LEMS, and it didn't do a thing (besides side effects).
-have problems breathing and with my facial expression, I read they do not often appear in lems patients, if they do, they're mild (mine are not mild).
-do not have cancers at the moment (that i know of, of course)
-am in my twenties. Mostly lems patients are a bit older.

I do however,
-have the problem where I get more weakness when I rest, after exercise
-have my MG weakness mostly from the cheeks-down (I'm not so ocular).
-have other stuff like constipationproblems and such.
-am worse in mornings, best in evenings (I figured this was due to taking the prednisone in the mornings)

Can you have both?!

What are diagnostic tests for LEMS, can this be found in your blood?

Last edited by anon6618; 12-22-2013 at 05:23 AM.
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Old 12-23-2013, 05:37 AM #2
Unsure81 Unsure81 is offline
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I would say my weakness definitely gets worse the more I do and mornings are usually my best time BUT I have found on more than one occasion that if I am out or I am doing something there are times that I can somehow "push through" the weakness for a limited amount of time and then it does seem to hit me later when I am resting which does make it seem like the weakness is getting worse as I rest? Is this anything like what you experience?? I usually find that if I have "pushed through" I need more extended rest after this to recover and see an improvement again??

I hope you are all well
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Old 12-23-2013, 09:57 AM #3
Stellatum Stellatum is offline
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Quote:
Originally Posted by Ravenclaw View Post
Can you have both?!

What are diagnostic tests for LEMS, can this be found in your blood?
The diagnostic test for LEMS is a blood test. I have heard of people who have more than one kind of neuromuscular junction antibody.

Abby
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