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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Junior Member
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I have not been diagnosed yet. I do have all of the symptoms. I was wondering who all on here works and how is that going. I am not working right now because my job required lifting and I can not do it. I am in school. I have two quarters till I finish. I am having problems with it but determined to finish. I will be working as a teacher or teacher asst to young children if I feel that I can not be lead teacher because of medical issues. I was wondering what your experience is if you still working, had to quit working or had to change jobs because of mg.
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#2 | ||
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Member
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I am techincally still a mystery as far as diagnosis goes, but LEMS is high on the list of diagnosis.. I am on the go in my job as well, and in the 6 months leading to my crash, I got to the point where I coudln't work.. I was unable to even hold my arms up to the keyboard due to shoulder weakness, I couldn't stand up for more than a few seconds, walking was difficult and talking (slurry speech) and breathlessness while talking made my job impossible.. it wasnt' until I totally crashed and ended up in the hospital getting IVIG that things turned around.. after the 2nd round of IVIG and a few weeks rest I was back at work full time again.. If I go too long without IVIG i can't function at work.. It keeps me alive!
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#3 | |||
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Junior Member
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I understand how you feel I ended up with same symptoms that you described on Christmas afternoon. I do not have a diagnosis yet.
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"Thanks for this!" says: | bny806 (01-24-2014) |
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#4 | ||
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Junior Member
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I am still working after only 2 months of MG. I drive a company vehicle as part of my job and the 1st month until the right dosage of mestinol was driving one eyed. The most I drove in one day was 250 miles and I really felt that for a couple of days. But I feel like I will be able to continue working now. My muscles really ache in the evening but at least I have a paycheck coming in.
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#5 | |||
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Junior Member
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#6 | |||
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Member
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I can tell you from personal experience, that driving a taxicab one-handed, while covering an eye with the other, did not instill a lot of confidence in my passengers. One guy asked me why I keep touching my face. I told him that if he had a face that looked as good as mine, he would touch his too. ![]() -Mark- Last edited by Panorama; 01-25-2014 at 09:11 AM. Reason: Chronic Typos |
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#7 | |||
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Member
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I teach in a college. I have been able to keep working, but I do have some issues.
The biggest one is that my voice gives out. I have learned to pace myself at work. I give the students frequent breaks. I also have started sitting on a stool to lecture rather than standing. I have not shared why I have issues with my students and they do not question me. It is possible that they already know because it is a small school and my dean and colleagues know. Rumors fly. Either way, I just keep on keeping on. If I quit, my financial situation will be dismal and I have people counting on my income. I was diagnosed 2 years ago, and I am still hanging in there.
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Celeste |
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