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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#11 | ||
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I had my ivig infusions a couple of days ago.
I retired a few years back, but was speaking with my new nurse Friday about this topic. I asked her if she had patients who were forced to stop working. Her response, none. I was amazed. She told me about one woman with 3 children, who is a grade school teacher, who she does every month. She infuses her around dinnertime, so she can cook for her kids, and her husband can handle them while she gets her infusion, then its off to work the next day. She also mentioned one of her patients is a physician, an older man, but he still works, and she infuses him around his busy schedule. she didn't discuss any other details, privacy and all that, but says she does many mg patients and they all continue to work. |
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