It sounds like you had a great response to prednisone, with minimal bad side effects, considering the dosage. Most find, however, that symptoms begin to return with a lowered dosage, especially if no other immune suppressing drug is added into the mix. You may want to discuss that with your doctor.

Unfortunately, even with treatment, you will likely never be 100% again. Only a teeny fraction ever achieve that. I know of one person, personally, and she had MG as a child and it went away in her late teens and has never returned. You will need to learn how to adapt to the day to day changes while working to find the right combination of drugs and adaptations to make your life as fulfilling as it can be. Remember, this takes time, and trial and error. There is no magic formula.

Good luck!

Is Imuran and cellcept the two other drugs to be considered?

It is the neck thing that concerns me the most. It is a bit painful (strained), not bad, but annoying that one is compelled to hold it up with a hand.

-Mark-

Yes, those would likely be the ones to consider. Cellcept works a little faster, and has less side effects, IMO. Imuran needs some pre-testing to check for some kind of blood marker that would indicate intolerance prior to beginning it.

Yes, the floppy neck is the pits. I've found that it comes and goes, so hopefully you will find it eases with time (but will probably return.)

Please watch the rate at which they lower the prednisone. They lowered mine too fast the first time and I got very sick. Don't be afraid to call the doctor if you feel really bad while weaning of pregnisone. It may be the prednisone and not the MG.

good luck
kathie

I was pleased that it was not so bad driving the cab last night, I think because the seat leans back a bit. I thought I might need to lash my head to the headrest with a bungee cord (only kidding).

When I was a paperboy in the 1960s, one of the people on my rout had his head on his chest. It was like his head fell down, turned left, and his left ear was touching his chest by his heart. I never knew the cause. Is it possible it was an extreme case of MG?

-Mark-

Has anybody considered the possibility that August Rodin's master work "The Thinker" was not a sculpture of a smart guy, but rather an undiagnosed Myastehenia Gravis sufferer?

-Mark-

Hi Mark,
Iīm confused about your Pred dosage: you write that you are on 60 mg per day but in an other thread, didnīt you say you weigh about 100 kg? That should make 60/100=0.6 mg/kg/d...?
BTW, your symtoms are almost identical to those I had when MG started in 2007. I was treated with 1 mg/d/kg for several months and slowly tapered during 18 months to 5 mg/d for an almost normal life till I relapsed due to a trial to 4 mg/d combined with a pneumo shot which sent me 2 years back. I repeated the whole process with less success as Iīm now on 7.5 mg/d and one PLEX every 7 or 8 weeks.
I was also treated with Cellcept for several years without effect, I coudnīt take Imuran as I am also on allopurinol.
Maurice.

No. My dose has been 60 mg per day, or 1.8mg/kg/day since November 15th. It feels longer. I will see my neuro on Monday the 3rd. I still have 12-days worth of doses. I wonder if my neuro will have me have me finish the whole prescription.

-Mark-