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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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![]() When I was a paperboy in the 1960s, one of the people on my rout had his head on his chest. It was like his head fell down, turned left, and his left ear was touching his chest by his heart. I never knew the cause. Is it possible it was an extreme case of MG? -Mark- |
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#2 | |||
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Has anybody considered the possibility that August Rodin's master work "The Thinker" was not a sculpture of a smart guy, but rather an undiagnosed Myastehenia Gravis sufferer?
-Mark- |
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"Thanks for this!" says: | bny806 (01-30-2014), southblues (01-30-2014) |
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#3 | |||
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Hi Mark,
Iīm confused about your Pred dosage: you write that you are on 60 mg per day but in an other thread, didnīt you say you weigh about 100 kg? That should make 60/100=0.6 mg/kg/d...? BTW, your symtoms are almost identical to those I had when MG started in 2007. I was treated with 1 mg/d/kg for several months and slowly tapered during 18 months to 5 mg/d for an almost normal life till I relapsed due to a trial to 4 mg/d combined with a pneumo shot which sent me 2 years back. I repeated the whole process with less success as Iīm now on 7.5 mg/d and one PLEX every 7 or 8 weeks. I was also treated with Cellcept for several years without effect, I coudnīt take Imuran as I am also on allopurinol. Maurice. |
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#4 | |||
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-Mark- Last edited by Panorama; 02-02-2014 at 08:15 AM. |
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#5 | |||
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Hello Mark,
Sorry for this but you wrote To date I weigh (and dropping) 235 pounds or 106 kilogram... and since you take 60 mg per day, you are on 60/106 or about 0.6 mg/kg/day and not 106/60 or 1.8 mg/kg/d... Maurice. |
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"Thanks for this!" says: | Panorama (02-02-2014) |
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#6 | |||
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Thank you for finding my mistake. It is a huge difference. I though you needed to divide the weight by the dose. And since I got the number I expected, something between 1.2 and 2.0 mg/kg/day, I stopped there. I found a great calculator at http://www.medcalc.com/pedidose.html I won't need to rely on my native intelligence the next time, good thing too. ![]() Take care, -Mark- Last edited by Panorama; 02-03-2014 at 12:20 PM. |
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