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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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In my case, slurred speech does not adequate describe my condition. For me the words stick in my throat; I cannot get them out. My dad used to say that someday I would "choke on my words." Dammed if he wasn't right.
![]() I been on high doses of Preds for nearly 3 weeks and my speech is excellent, altogether if I talk to long it becomes a bit labored. I know I will probably lose some ground when reduced to maintenance levels, but any improvement is most welcomed. -Mark- Last edited by Panorama; 02-02-2014 at 04:16 PM. |
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#2 | |||
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I have had the tongue twitching, especially when I first started mestinon. But it settled down when I got used to mestinon. The other time I had it really bad was when I was in a crisis and the neurologist in ICU was having medical students look at my tongue because apparently, it was dancing a jig. At this time I was unable to even roll over in bed, speak clearly, etc.
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