I have MS but have noticed major left side weakness lately. I just had surgery (non MS stuff) and thought that might be the reason. MS and surgery are not a good combo. I am going to ask my Neuro what he thinks.

I was tested for MG when they were trying to figure out what I had and that came back negative. But they did diagnose me with MS. I think the two diseases are very similar.

Yes they are. So what tests came back positive for MS and negative for MG. If you don't mind answering

I was diagnosed with MG by an abnormal sfemg. My left side is very much weaker than the right, except for my face, where my right eye and right side drops much worse than my left. It is not uncommon for MG symptoms to be worse on one side, but still have symptoms on both side.

I experience pain and stiffness with my MG, but not spasticity.

I am certain I have MG because I respond so well to mestinon. Have you been prescribed mestinon?

kathie

No because I have to have more test to try and figure out what it is..Thank you for your response.

Some neurologist try mestinon on suspected MGers to see if they respond. I was started on mestinon several months before the diagnostic tests.

kathie

They try it before which test and if it works then what?

I have MG and my weakness is predominantly right-sided. My eye and facial droop is very one sided - although if I have really overdone it the other side will show mild weakness....but, by that time the right is so bad it only shows in pictures etc!! My arms and legs seem evenly weak but when my legs are bad I tend to limp a little compensating for the right side - so it seems I am weaker there too!

Good luck with getting to the bottom of this, limbo is not a nice place to be and I really hope you get some answers (and medication) soon. Let us know how you get on x

I know they did a test where they put some sticky glue like goop on my head and attached some sort of electrodes. I had to sit in a chair while they did all kinds of testing. I just remember the nurse telling me that I didn't have MG.

I had an MRI with contrast and that's what the Neuro based his dx on. I know they did extensive blood tests but I'm thinking that was for Lyme and Lupus.

I have progressed alot since 2005 when I was dx. But I think I've had MS for alot longer than just since '05. That was just when I finally got an answer to all the strange sx I'd had for many years.

My MRI showed nothing. So I do not know. I finally got a call back about my insurance and woman told ut if they me to hold for the woman that I was suppose to talk to and she gave me number to call back if we got disconnected and we did get disconnected and when I tried back all I got was answering machine but if they did not want to talk to someone on a Friday, why did they call me in first place...ugh..Had to vent a little..