Home Menu

Site Navigation



Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
NeuroTalk Support Groups > > >

Myasthenic nose??

Reply
 
Thread Tools Display Modes
Old 02-08-2014, 11:19 AM #1
southblues's Avatar
southblues southblues is offline
Member
  
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
southblues southblues is offline
Member
southblues's Avatar
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
Default Myasthenic nose??
What are people talking about when they say their nose is myasthenic?
__________________
Celeste
southblues is offline   Reply With QuoteReply With Quote

advertisement
Old 02-09-2014, 05:51 AM #2
bny806 bny806 is offline
Member
  
Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
Default
I've never heard of this before, but I do get a droopy nose...it makes my upper lip stick out more, almost feel swollen.. I look like I snarl when I smile when this happens... I've also had the nasal speech when symptoms get bad - not sure if that is what they are talking about either.. hopefully someone else with more insight will chime in
bny806 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
cait24 (02-09-2014), southblues (02-09-2014)
Old 02-09-2014, 07:55 AM #3
Panorama's Avatar
Panorama Panorama is offline
Member
  
Join Date: Jan 2014
Location: Silicon Valley
Posts: 263
10 yr Member
Panorama Panorama is offline
Member
Panorama's Avatar
 
Join Date: Jan 2014
Location: Silicon Valley
Posts: 263
10 yr Member
Chat
Quote:
Originally Posted by southblues View Post
What are people talking about when they say their nose is myasthenic?
It may be this:
Profound Olfactory Dysfunction in Myasthenia Gravis
-Mark-
Panorama is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
cait24 (02-09-2014), southblues (02-09-2014)
Old 02-09-2014, 08:27 AM #4
southblues's Avatar
southblues southblues is offline
Member
  
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
southblues southblues is offline
Member
southblues's Avatar
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
Default
The reason that I asked is because I have had (for a long time) terrible trouble with my nose stopping up, I can't smell stuff, and I sound nasal. This occurs sporadically. My ears also stop up and my doctor has said that the ear thing is related to MG. I can for sure say that the ear thing happens when I am tired and "used up".
__________________
Celeste
southblues is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
cait24 (02-09-2014), Panorama (02-09-2014)
Old 02-09-2014, 09:09 AM #5
Panorama's Avatar
Panorama Panorama is offline
Member
  
Join Date: Jan 2014
Location: Silicon Valley
Posts: 263
10 yr Member
Panorama Panorama is offline
Member
Panorama's Avatar
 
Join Date: Jan 2014
Location: Silicon Valley
Posts: 263
10 yr Member
Default
Quote:
Originally Posted by southblues View Post
I can't smell stuff . . .
It's been 5 or more years for me.

I starting to get some sense of smell back. It might be the Preds.

-Mark-
Panorama is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
cait24 (02-09-2014), southblues (02-09-2014)
Old 02-09-2014, 02:24 PM #6
bny806 bny806 is offline
Member
  
Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
Default
oh yes, the ear thing drives me batty!! When I am getting weaker, It's like the back of my throat doesn't work quite right, swallowing is affected, nasal voice happens and the ears feel so stopped up - like Eustachian tube dysfunction.. that can be so irritating. I definitely think it's all related!
bny806 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
cait24 (02-09-2014), southblues (02-09-2014)
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Congenital Myasthenic KayoKelly Myasthenia Gravis 8 04-15-2013 11:55 PM
My myasthenic arm question! Anacrusis Myasthenia Gravis 10 02-12-2013 12:39 PM
Myasthenic Crisis seishin Myasthenia Gravis 13 01-19-2013 04:13 PM
Measuring my own myasthenic weakness Anacrusis Myasthenia Gravis 6 12-06-2012 06:58 AM
A myasthenic brain Anacrusis Myasthenia Gravis 38 11-21-2012 09:42 AM


All times are GMT -5. The time now is 10:50 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home