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Old 02-22-2014, 04:49 PM #1
pinkkathryn pinkkathryn is offline
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Join Date: Feb 2014
Location: Ohio
Posts: 4
10 yr Member
pinkkathryn pinkkathryn is offline
New Member
 
Join Date: Feb 2014
Location: Ohio
Posts: 4
10 yr Member
Default Ivig and double vision

Last Monday I started with symptoms of double vision, this was never a symptom I ever had before with my double vision. I was diagnosed with mg in August. Symptoms of muscle weakness in arms and legs and some facial weakness had started back in May. Anyway I'm only 23 so my dr recommended I try a thyme tony first (other than my mestinon which I did see great improvements with).

I had my surgery dec 4 and had no symptoms since.. At all. Then Monday the double vision started. My dr previously told me to only take my mestinon as needed so I had stopped when I was having no symptoms. What was your drs advice about taking mess without symptoms?

I visited the neurologist this week but could only get in to see a nurse practitioner ... Anyway they want me to keep taking my mestinon which is not helping my vision at all and then do five days of five hours each of ivig treatment. Because my symptoms have never been severe we never really talked about ivig before. I'm wondering if it will really help my vision iss because I'm having trouble working at all.. And wearing an eyepatch to even see at all.

Any advice on ivig? Or knowledge of it will really help me? I'm hoping cuz this is super frustrating and I actually work two jobs and am taking an online class and don't know how else to solve this diplopia issue!!

First post here.. Btw!
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