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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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So sorry you are going through all this. Have you tried some ice packs on your eyes? It helps me when they start to tremble.
kathie |
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#2 | |||
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I really would re-think taking meth. That stuff is very dangerous.
__________________
Celeste |
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#3 | |||
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I notice they tried you on Adderall and it didn't help. (I my have misread that) Please be aware that Adderall is contradicted for mg patients. It stopped my breathing the last time I was in ICU and I was on a vent for 7 days. It's one of those drugs mg patients should never take because it affects your breathing.
Goo luck and hope you find what works for you! Juanita |
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"Thanks for this!" says: | Panorama (02-18-2014), southblues (02-18-2014) |
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#4 | ||
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Quote:
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#5 | ||
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According to a couple sources I found, the amphetamine class is contraindicated because it competitively blocks ACH receptors. That probably explains the increase in eyelid and other symptoms.
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#6 | ||
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Grand Magnate
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Have you had a conversation with a pharmacist about all of these drugs you are taking? I'm concerned that you will have either a severe reaction/interaction or might, well, become a statistic, if you know what I mean.
Drugs are great but they do kill almost 100,000 people every year. Doctors prescribe them because they want to help their patients. But sometimes too many drugs is not a good thing. I know you have a complex health history and it's not so easy to balance things. And it sucks to have so much going on! Mrs D will tell you that talking to a pharmacist is a great way to go when you are unsure of a drug. AND then talking to your doctor again. I know you're smart, and you are a great advocate for yourself. I was just uneasy reading about the drugs you are "playing" with (not that you're literally playing with them!). I hope you understand my concerns. Annie |
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"Thanks for this!" says: | southblues (02-24-2014) |
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