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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#11 | |||
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Junior Member
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To clarify, Annie, I've been off ALL pred for a long time. I, too, advocate for the slow and steady wean for the safest outcome. I was just commenting that it was brutal!
I'm just deciding w dr which is best next step. Wouldn't it be nice if these decisions weren't even on our radar! Be well all ![]() |
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"Thanks for this!" says: | AnnieB3 (05-20-2014) |
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#12 | ||
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Grand Magnate
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The persisting hives might've been from the brand of IVIG you had. Did they try a different brand? Did you pre-medicate (and post-medicate)?
Thanks for clarifying that. I admit that I didn't read your post very clearly because I was a bit upset. ![]() Annie |
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#13 | ||
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Junior Member
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Annie ...Thankss for correcting me ...i did not see the word ....BEGIN ..
I'll keep taking my prednisone as my neuro recommends Again ...thanks and I'll read more carefully next time ![]() Jack |
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#14 | ||
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Elder
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I agree with the post saying not to taper off the pred. without doctor. Coming off is difficult under the best of circumstances. Don't change doses until you talk to your doctor. ginnie
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