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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#11 | |||
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When I was having so many leg problems I was almost ready to get a wheelchair then my neuro-muscular doctor told me to stop taking statins. He said statins was one of worse drugs on the market. Sure enough within a week my legs started getting better.
mike |
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"Thanks for this!" says: | Panorama (03-13-2014), southblues (03-13-2014) |
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#12 | |||
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Quote:
-Mark- |
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#13 | |||
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I tried Zetia which is a non-statin but it also caused me weakness but my MG is very complicated. I am positive for 4 antibodies. Zetia is pretty expensive.
Mike |
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"Thanks for this!" says: | Panorama (03-13-2014) |
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#14 | |||
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Quote:
-Mark- |
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#15 | |||
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When I started with muscle weakness, they took me off Crestor (SImvastin statin) for several months. I had no improvement in strength, but my cholesterol went from 170 to 260. So they had to put me on something, so they tried zetia (not a statin) and my cholesterol went down only a little. So they put me back on Crestor and my cholesterol is back under 170. they tested my CK all along and it was normal. I think that is suppose to go real high on statin induced myopathy.
kathie |
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"Thanks for this!" says: | Panorama (03-13-2014) |
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#16 | ||
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Grand Magnate
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Or you could refer to the article on statins that Mrs D put up here quite some time ago.
http://www.sciencedaily.com/releases...0510150143.htm If you don't have super high cholesterol, Mark, why are you on a statin? It can be brought down with diet and "exercise." I put that in quotes, because MGers often can't exercise that much. Mike is right, statins are one of the drugs that MGers really shouldn't take unless they have a genetically high cholesterol. http://umm.edu/health/medical/altmed...red-yeast-rice |
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"Thanks for this!" says: | pingpongman (03-13-2014) |
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#17 | |||
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Junior Member
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#18 | ||
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I'm so sorry you're struggling with pain and medication...Darn! Life is hard enough, isn't it? But you've brought up an interesting point with your percentage analogy: in all cases, my falls have taken place when a large percentage of my attention was elsewhere. Now I've been aware for some time that I have to attend 100% to my driving; I can no longer "multitask" as distractions can overwhelm my attention. For instance, the other night I pulled over to let another car (with intensely bright headlights) pass, and then...ULP!...pulled back out immediately in front of another approaching car. He was so mad he tailgated me for another mile before he turned off. And I was very, very disturbed that I'd totally missed seeing him. How could that be? I am so darn careful. Best, Laurie |
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