It feels like I have a tight band around my waste, at the bottom of my ribs and below it. This happens on and off. It is worse at night. It is also worse on my right side, which is the side that is totally out of whack from eyeballs to feet.

I have mentioned it to all my doctors. Neuro 1 said I am crazy. Neuro 2 says MG causes it. Pulmonologist says it might diaphragm spasms. Primary care physician says he has no idea.

It is aggravating me badly right now, so I was wondering if anybody else with MG has this, and if so, do you know why?

I get it often. Right now I am having a bad flare of MG and I get it most days. It makes it hard to sit upright.

kathie

I guess that I am not alone. It doesn't bother me all that bad all the time, but other times it drives me up the wall. Anybody know what it is? Muscle spasms?

It sounds very much like the "MS hug." Do a search on it and see what you find. It sounds very uncomfortable.

I was also going to say that what you describe sounds like ms hug.

Is it fair that all of those doctors get paid for "I dunno."

Sometimes sensitivities to foods like gluten, corn, broccoli, nuts, etc. can cause a bloating that feels like a tight band. Does this ever happen within an hour or so of eating? It can happen after an offending food hits the large intestines, too.

When did it start? How often does it happen? Start tracking it! There might be correlations to something you're taking in (food or drugs).

It could be MG but don't assume that.

Have you had your appendix out?

Okay, this is gross, but poops can distend one's belly, too! Do you get enough high fiber in your diet?

I hope you can figure it out because it sounds awful.

Annie

I have, and have had for a long time, the suspicion that I may have MS rather than MG. My grandfather had MS. I had a normal MRI three years ago, but I wonder if it is still normal.

I read up on the MS hug, and it is apparently not diagnostic for MS. So maybe it is muscle spasms that are somehow related to MG.

As long as I stay with my current neuro, I won't find out. He is completely satisfied with his diagnosis. Maybe he is right. I am better than I was before cellcept.....

Celeste,

CC is used to treat MS as well. A second opinion might be worth pursuing.

Celeste, Do you have, or have you had, nerve pain?

I get aches and pains. I don't know whether they are nerve pains or the result of old age and high mileage.