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Old 03-20-2014, 09:21 AM #4
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jana jana is offline
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Join Date: Apr 2009
Location: Tenn
Posts: 554
15 yr Member
jana jana is offline
Member
jana's Avatar
 
Join Date: Apr 2009
Location: Tenn
Posts: 554
15 yr Member
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Thanks, Mark! Great info!!

I actually have this book -- well, TWO copies -- AND the CD. I sorta, kinda like to be prepared. I got the extra book to GIVE to a surgical/medical team, if needed. I guess that now I will be passing it along to my sister and ordering another!

I've been on Mestinon since 2005 -- wow, my MG is getting OLD!! I totally AGREE that you have to be so very, VERY careful about its use. I learned SO much from the long-timers here (Annie and others) about what to watch for.

One of the things I learned...............a Mestinon tablet put under the tongue and allowed to "melt" works MUCH faster than in an hour!

I'm so glad you do research and that you POST IT!! Each time you do, you are educating LOTS of MGers -- some who are "lurking" and not yet comfortable enough to ask questions.

So, PLEASE continue!!!

BTW, my sister sees my "group". My MG guy is the MDA director, an MG specialist, and is the head professor of neurology at the medical school a couple of hours from my home. I also have a great guy in a smaller city (less than an hour away) who originally diagnosed me. With all of the HORROR stories I have read about here, we KNOW how blessed we are to have competent and compassionate docs. Thanks for asking!!
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