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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Grand Magnate
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Fix your stomach? What does that mean?! Sounds a bit archaic to me. Do you have the MTHFR mutation? I remember that you had some odd thing like that. Or was it the clotting disorder? If so, you have to take methylcobalamin (not cyanocobalamin) and folic acid every single day for the rest of your life!! I don't have any idea how long I was B12 deficient. At least two years. The cyanocobalamin shots weren't raising my B12 much at all. It was when I began taking methylcobalamin sublingual tablets that it went up. I took mega doses every day for a year, but I still had damage. I can barely feel my face when I touch it. Oh well. But, again, I don't know how long mine went undiagnosed. They say that it takes as long to recover as you've had the deficiency. You really have to take B12 2 - 3 times a day, every day (plus folic acid). I suggest getting a separate supplement of folic acid with a small mg. amount (so that you don't overdose). You can't get too much B12. The cyanocobalamin shots might help with your liver stores, but the liver still has to convert the cyano to methyl before your body can use it! So why not keep taking the methyl. Again, that depends upon whether you have the MTHFR. Yeah, I know what other words that looks like! ![]() Did they check your parietal and intrinsic factor antibodies? Let me know if I can help out in any other way. A B12 deficiency makes you feel awful, and I wouldn't wish it on anyone! ![]() Annie |
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To bny806 @ Immunoglobulins | Myasthenia Gravis |