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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Grand Magnate
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Geez, I'm surprised they even thought about Pred for you, since you already have Type II diabetes! I hope you guys can figure out what treatments work best for you.
Annie |
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"Thanks for this!" says: | southblues (05-06-2014) |
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#2 | ||
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Junior Member
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When I first started taking the Pyridostigmine my symtoms started going away and it was the best I had felt in a long time. I had energy and felt like doing things which also improved my overall mood. Then I started prednisone and got worse again. I stopped and started feeling better again. My Dr put me on a lower dose and symptoms worsened. He told me to stop and start taking 1/2 a 5mg. I stopped on Monday the 5th after talking to him but haven't started back on the prednisone. I wanted my symptoms to start to deminsh again but they haven't. It almost feels like they are getting worse. I have continued to take the Pyridostigmine but it doesn't seem to be working. I am starting to feel it in my arms and my breathing a little. I had my Pyridostigmin refilled last weekend. Is it possible I got a "bad batch"? Previously it gave me diarhea which my Dr gave me a prescription for but I haven't needed to take it.
Thanks, Perry |
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#3 | |||
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Member
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Many people experience worsening of MG temporarily when they start prednisone. For me it takes 2 weeks to feel the full effect of the prednisone dose. Going off prednisone can also make you feel very weak. It did for me. It takes a while for the adrenal glands to bounce back in their production.
MG varies day to day. You are not going to see immediate change in your conditionwith changing meds. It takes a while for the immunosuppresants to work. You may need to look at the longer overall trend rather than the day to day. good luck kathie |
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