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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Grand Magnate
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Perrym, Wow, that must've been hard to hear that you have a tumor. I'm sorry you are dealing with this.
In some people, when the tumor is removed, the MG goes away. Although, there have only been a few incidents of that recorded. I hope you are consulting with a hematologist/oncologist, too, about all of this, and coming up with a post-surgical protocol. You might need some sort of radiation or chemo. They have to biopsy the tumor first, though, and "stage" it. http://www.jthoracdis.com/article/view/890/html I hope you have a good support system. This is a lot to take in! Hey, you have MG. Hey, you have a tumor. Geez. What else can we do to help? Are you confident in your knowledge of MG? I did not have the thymectomy, so I can't help you there. Obviously, when there is a tumor, they often want to split you open! ![]() http://onlinelibrary.wiley.com/doi/1...nticated=false http://www.nmh.org/nm/chest-treatments-thymectomy I hope that the surgery goes really well, and that your recovery is quick. There are a lot of past posts on thymectomies here, and a lot of great advice from everyone on them. ![]() Annie |
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