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Old 05-11-2014, 09:23 PM #1
drpdhmr drpdhmr is offline
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Quote:
Originally Posted by Steelworker View Post
And do you take the mestinon on the good days or is it prn?
Unless my symptoms persist for several days I don't change my mestinon dosing.
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Old 05-12-2014, 07:41 AM #2
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Originally Posted by drpdhmr View Post
Unless my symptoms persist for several days I don't change my mestinon dosing.
The pain in my legs is so overwhelming I cannot do anything. Walking a few steps is painful and my tolerance is high. If I take 500 mg of ibuprofen it will ease off. Most of the time if it starts prednisone is the only thing that will calm it down. I have added spinach or Kale to green smoothies and that also will give some relief. Just trying to learn what works and does not. Any others out there?
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Old 05-12-2014, 08:15 AM #3
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My neuro-muscular took me off statins. He said they were one of the worst drugs on the market. I was so bad at the time I was considering a wheelchair. My legs got better right away when I stopped statins. You might want to discuss this with your doctor.
Mike
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Old 05-12-2014, 11:30 AM #4
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My neuro-muscular took me off statins. He said they were one of the worst drugs on the market. I was so bad at the time I was considering a wheelchair. My legs got better right away when I stopped statins. You might want to discuss this with your doctor.
Mike
Thanks I will check on that!
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Old 05-12-2014, 04:44 PM #5
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Thanks I will check on that!
I just tried Zetia but my MG would not allow it. But you may want to try it. My Mg is very complicated as I am positive for 4 antibodies. Oh as for my legs, I wasn't in pain but could only lift my feet about 2 inches due to weak muscles.
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Old 05-14-2014, 08:03 AM #6
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I just tried Zetia but my MG would not allow it. But you may want to try it. My Mg is very complicated as I am positive for 4 antibodies. Oh as for my legs, I wasn't in pain but could only lift my feet about 2 inches due to weak muscles.
Mike
Since my cholesterol has been normal I'm now off of the meds. Only 24 hours and still having pain. I'm sure it has to get out of my system. It is an ache that just gets more intense unless I take something to calm down. When it starts the progression is rapid and cannot bare any weight on my legs. Doctor has not been able to figure it out. Thanks for your insight and experience.
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Old 05-14-2014, 05:15 PM #7
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Hope you are feeling better soon.
Mike
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