Hey, Eve. I'm so glad that they didn't discount the clinical presentation and response to Mestinon. What a relief that must be for you!

It's not so much medical guidelines that keep them from doing more drugs, but legal ones—as in "I don't want to be sued."

The lab range is an issue that I'm too worn out to get into, but you raise a very good point.

Yeah, Mike, can you share those ABs with the seronegs?!

Eve, I totally get what you mean by being grateful for not having to doctor anymore. I would even suggest that you focus completely on something useful or helping someone else. Get that bad doctoring feeling the heck out of your body.

But since they won't try more treatments, that means you really have to manage MG with Mestinon and rest (and common sense). It's possible to do, but it doesn't always work.


Annie

Rest and more rest!!! Listen to your mind, if it says you are tired believe it. It takes a long time to adjust to this disease. Took me 3 years and I'm still learning.
Mike

More a case of listening to your body. My mind says I can go the store (500m) and get the shopping... my body says "ha just you try it! Don't think I'm going that far and back!"