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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Since I am not yet diagnosed, I have no access to Mestinon. However I do know that Caffeine has helped me in the past.
So my question is, can anyone say what the Mestinon/Caffeine equivalence is. I see people reporting 60mg Mestinon 3-5 times per day. Caffeine pills are 200mg. Can anyone say what that would equate to in Mestinon? |
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#2 | |||
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I just drink a lot of coffee. It really helps me.
Mike |
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"Thanks for this!" says: | AnnieB3 (05-25-2014) |
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#3 | ||
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Member
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The trouble with drinking coffee, is that you never know how much caffeine you are getting from one cup to the next. Different coffees, different brewing methodology etc etc. Even when you make it yourself it can vary from cup to cup.
And most people add sugar and milk.. absolutely not good for you, whether you have MG or not! |
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#4 | |||
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I used to drink extra coffee in the afternoons before I knew what was wrong. It eventually was not enough to pep me up. The problem with a lot of caffeine, for me anyway, is that it produces the jitters and can make the heart race, a very uncomfortable feeling for me.
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"Thanks for this!" says: | AnnieB3 (05-25-2014) |
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#5 | ||
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Quite correct Limpy. It took me all day to drink enough espresso to get the jitters, but it does happen and some people are more sensitive than others.
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"Thanks for this!" says: | AnnieB3 (05-25-2014) |
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#6 | |||
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I would be very cautious about caffeine pills. You can overdose and kill yourself with them. A good cup of coffee is a great thing though.
__________________
Celeste |
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"Thanks for this!" says: | AnnieB3 (05-25-2014) |
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#7 | |||
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Member
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Mike,
I make a coffee drink with Almond Milk. I use a handful of Ghirardelli Classic White Chips, 12 ounces of Vanilla Almond Milk, and two table spoons of Nescafe Clasico Dark Roast instant coffee crystals. I blend in the Vitamix. I usually poor into a glass and put the mixture in the freezer for 15 or 20 minutes. You can also use more or less Ghirardelli chips to make it more or less sweet. -Mark- |
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#8 | |||
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Member
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I just love the old fashioned cup of coffee.
Mike |
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#9 | ||
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Grand Magnate
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No, JJ, we don't know!
You can't say that your experiment will work with all MGers. We are all "variable" given how MG is. To measure a constant against a variable doesn't work. http://www.apelslice.com/books/97806...id4636650.html You have to take into consideration all constants and variables (i.e., varying strengths of coffee). Even then, you'd have to involve a large group of MGers to test that theory. I'm glad Mestinon is working for you. I like my coffee organic, black, and hot. Simple and yummy. Annie |
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#10 | |||
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Member
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I love coffee and I drink it every day. It does seem to help me feel better.
The issue with using it instead of mestinon for me is that caffeine crosses the blood/brain barrier whereas mestinon does not to any appreciable degree. If I try to drink coffee late at night, I won't sleep at all. Mestinon helps me breathe during my sleep.
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Celeste |
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