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Old 06-04-2014, 02:24 AM #1
angell angell is offline
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angell angell is offline
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Default Exercising with MG

I had a thought. Now admittedly, this is where my troubles usually begin but I digress...

Since my muscles are hitting fatigue so quickly, I was wondering about exercise. It occurred to me that perhaps I could come up with 10-12 exercises, each working a different part of the body and do rotating sets of 1-3 reps each. For instance:

a single (or two or three) bench press followed immediately by a single curl followed immediately by a single leg press, etc. It seems that by the time I complete all ten-twelve exercises the first muscle group (in the example above it would be my chest) would possibly recover and be able to be hit again.

Is the fatigue cumulative over all muscle groups or could this strategy work? I may not be able to do what I did - but I still want to do what I can.
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Old 06-04-2014, 03:03 AM #2
AnnieB3 AnnieB3 is offline
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AnnieB3 AnnieB3 is offline
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Default

Hey, Angell. This is a tough topic for MGers. How much you can exercise depends upon how "stable" your MG is.

All I can tell you is what I attempt to do. I have a total gym, a stationary, recumbant bike, and a version of the first product below.

I have found that more "fluid" resistant exercise is better for MG, instead of using weights. A pool would be idea—literally fluid—if you can find one to use. A pool cools down the body at the same time you are working against the resistance of the water.

I alternate the aerobic nature of the bike one day, with total gym type reps two days later. I don't do something every day. And it all depends upon whether or not I've gone out to do something. Going out really wipes me out, so nothing is done for a day or two.

MG is weird. You can do something one day, feel slightly worse that day, worse the next, and even worse the second day! But everyone is different.

There's a lot you can do with diet, too.

I would also suggest getting an oximeter so that you know what your normal O2 is, normal pulse, and what happens to them when you exercise and afterwards. Also, have a fan blowing while you do exercise, so that your body can remain on the cool side. That is really important.

You might need to rethink exercise, but that doesn't mean that you can't have some kind of program. I would also suggest speaking to your neurologist about what she or he thinks about it all.

I hope you can continue to exercise or, rather, mini-exercise.


Annie

http://www.hsn.com/products/tony-lit...t-dvds/7220265

http://www.qvc.com/CatalogSearch?lan...word=total+gym
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Old 06-09-2014, 09:34 AM #3
Elle114 Elle114 is offline
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Default questioning, questioning, denial maybe?

Hey Annie,

This is why I really question my recent dx of MG. I use the treadmill every morning for about an hour and sweat like a pig, but my legs seem ok. I really don't get a chance to sit down and rest until after showering etc.

Reading these post sounds like that is unusual for MG

I do have the hallmark droopy eyelid, weak facial/jaw muscles and my left arm especially does get fatigued.

I know I am trying to talk myself out of this dx, and denial is probably part of the process but some things just don't seem like they fit. I keep thinking there must be some other explanation.

I have noticed having a lot of terrible word mix up. For example, if someone else was talking about cell phone, then a few minutes later I would say... "would you hand me that phone".... when i meant "book" not phone. Also, I had the hardest time with trying to remember names, places, like I just couldn't remember the word. Those things happened all weekend long, and by Sunday night I was getting pretty upset over it. I don't recall that being associated with MG? It makes me think that brain lesion is something.

I don't know what to think, guess that is the problem.
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