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Hey Annie,
This is why I really question my recent dx of MG. I use the treadmill every morning for about an hour and sweat like a pig, but my legs seem ok. I really don't get a chance to sit down and rest until after showering etc.
Reading these post sounds like that is unusual for MG
I do have the hallmark droopy eyelid, weak facial/jaw muscles and my left arm especially does get fatigued.
I know I am trying to talk myself out of this dx, and denial is probably part of the process but some things just don't seem like they fit. I keep thinking there must be some other explanation.
I have noticed having a lot of terrible word mix up. For example, if someone else was talking about cell phone, then a few minutes later I would say... "would you hand me that phone".... when i meant "book" not phone. Also, I had the hardest time with trying to remember names, places, like I just couldn't remember the word. Those things happened all weekend long, and by Sunday night I was getting pretty upset over it. I don't recall that being associated with MG? It makes me think that brain lesion is something.
I don't know what to think, guess that is the problem.
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Elle, Your post kind of got lost in the other thread!
Did you test positive to a MG antibody? If not, did they test you for LEMS?
It's very important to be tested for LEMS as well, because that disease comes with the risk for small cell lung cancer!
When did your MG symptoms begin? It's possible that your MG hasn't generalized to your legs quite yet, but that doesn't mean that it won't! MG is a "head and down" disease, meaning that it normally begins with symptoms in the eyes/face/head/neck.
Don't assume that you can't crash suddenly after pushing your body the way that you are. It's the "newbies" who often have a MG crisis in the first year because they still don't know how their disease will react to activity, or how much activity.
BTW, Do your feet still turn blue?! Have you addressed that? Maybe you should see a pulmonologist to assess your breathing and O2 saturation.
What else can we help with? Do you have any other questions? There's a lot to learn with MG.
Annie
06-13-2014, 01:19 AM
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