Annie

I too have struggled with the same issues. Just yesterday I tried to do something so seemingly non-physical I would have never thought it would make me winded/cause any issues yet I had to sit and rest for 30 minutes before I could catch my breath.

I hope it helps you to know that while you may not always be able to help with physical things anymore you are an invaluable asset to this group and while I dont click the thanks button anymore (mainly because my ipad password system keeps resetting) I GREATLY appreciate your advice, wisdom and depth of knowledge which you so generously share with the group.

Maybe those of us with MG were such hard workers all of lives that we did all the physical work we were supposed to do already?

I hope today is a better day for you. BTW I would never be able to be all alone, I have three little loving Italian Greyhound dogs (they are really velcro dogs) without I do not think I would have made it through the past couple years!

Stephanie

Annie, I am so sorry you are going through this. MG has certainly impacted our lives immensely and some days it is a battle you just can't win. Do not feel that you do not contribute because you can't physically do the things you used to. I am sure you contributed your emotional support and some days that is all you can do.

I know how much you have contributed to those in this forum. Just the other day, when I was fighting with the salad spinner and the salad spinner won, I thought of your similar post. Your stories and support have prepared me for the progress of my disease. I am sure I would have cried much harder being defeated by salad spinner if it was not for your story. A salad spinner hardly compares to a raging flood. Yes some days MG just wins and all you can do is rest, regroup so you have the strength to fight the struggle another day.

How do I cope. I decided to stop trying to win and accept my losses. I make sure I schedule something every day that brings joy to my life, no matter how backed up the laundry and cleaning is. It is important to find some balance. This disease makes us put so much energy in the basic necessitites of life, we have no energy left to enjoy life. We must force ourselves to put "joy' as a priority in our life. I hope this helps and your situation improves. I find my joy in quilting, needle work and my dog.

kathie