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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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As SueV said - I wonder the same thing.. I know I have done that with IVIG.... i wasn't noticing the dramatic improvements and then it wearing off (troughs and valleys) anymore.. so thought maybe it wasnt' working.. then I tried extending it out, and quickly realized oh no, i need that.. and when it kicked in it was more obvious.. It's easier for my husband to see - when I question if it's working he will remind me how I could barely move for a while there before any treatment. .. Good luck!
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"Thanks for this!" says: | juliejayne (06-27-2014) |
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