[StephC]

FYI in case anyone doesn't know you can setup a google alert to send you an email notification with links whenever there are news stories with reference to myasthenia gravis - it isnt often and not always informative (sometimes reference to obituaries) but yesterday there were 3! Often the stories are too technical for me but I still like to get them. the 2nd link about stem cell seems like most encouraging thing I have seen yet (although what do I know?)

Stephanie


http://medicalxpress.com/news/2014-0...rs-cancer.html

http://medicalxpress.com/news/2014-0...ia-gravis.html

http://www.youris.com/Health/Genetic...-Myasthenia.kl

[limpy]

The middle link talks about monoclonal antibodies that target specific cells for destruction. Rituxan is a monoclonal antibody and it has proven to work very well for myasthenia gravis and Lambert Eaton Myasthenic Syndrome (LEMS). It targets the B cells which are thought to be responsible for manufacturing the attacking antibodies in these two diseases. I had it in December and am hoping to soon get it again.

[AnnieB3]

Thanks, Steph. Any information on MG is helpful.

Now if only they could "collaborate" on diagnosing MG patients promptly and treating MG patients well during an exacerbation or crisis.

The third article/video is from this Institute in France, which also deals with CMS.

http://www.institut-myologie.org/

Annie