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How has Cellcept worked for you

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Old 08-12-2014, 02:08 PM #1
perrym perrym is offline
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Default How has Cellcept worked for you
My Neuro wants to put me on Cellcept. Just wondered what other's experiences have been in regards to how it has worked and side effects.
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Old 08-12-2014, 03:29 PM #2
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My Neuro wants to put me on Cellcept. Just wondered what other's experiences have been in regards to how it has worked and side effects.
I started Cellcept three weeks ago, 1500 mg per day. I do not have any GI issue, so far. It can take up to 5 or 6 months for Cellcept to become effective.

Cellcept is favored by most in the forum over Imuran. I had one Stanford trained neurologist who strongly recommended Imuram. I had another UCLA trained neurologists who strongly recommended Cellcept. How is a patient to know?

Welcome to the group,

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Old 08-12-2014, 04:39 PM #3
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I'm on 2500mg of Cellcept a day plus mestinon and prednisone. I seem to be pretty stable. I took Imuran for 12 months and it made me sick as a dog. I lost 45 pounds. But remember each of us are different.
Mike
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Old 08-12-2014, 08:45 PM #4
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I have been on Cellcept since September 2013. I am taking 500 mg three times a day. I have not had any side effects and my lab work has been perfect. I started feeling better within 6 months.
Currently, the heat and humidity has been causing more shortness of breath and fatigue. I really hate summer
Good luck to you
Sandy
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Old 08-12-2014, 09:54 PM #5
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I started feeling better within 6 months.
Sandy,

Were you on Prednisone too?

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Old 08-13-2014, 01:47 PM #6
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I was on Cellcept for 10 years - started at 1500 mg/day and gradually increased to 3000, Never had any side affects and my blood work was great. After a major crisis in 2010, I switched to Imuran because it didn't seem the Cellcept was working as well as it had been working. Also did a year of Cytoxan infusions which I give credit for helping stabilize me to the point I am at now. Am currently on 200 mg Imuran/day.

Good luck!
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