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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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08-12-2014, 02:08 PM | #1 | ||
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My Neuro wants to put me on Cellcept. Just wondered what other's experiences have been in regards to how it has worked and side effects.
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08-12-2014, 03:29 PM | #2 | |||
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Quote:
Cellcept is favored by most in the forum over Imuran. I had one Stanford trained neurologist who strongly recommended Imuram. I had another UCLA trained neurologists who strongly recommended Cellcept. How is a patient to know? Welcome to the group, -Mark- |
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08-12-2014, 04:39 PM | #3 | |||
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I'm on 2500mg of Cellcept a day plus mestinon and prednisone. I seem to be pretty stable. I took Imuran for 12 months and it made me sick as a dog. I lost 45 pounds. But remember each of us are different.
Mike |
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"Thanks for this!" says: | Panorama (08-12-2014) |
08-12-2014, 08:45 PM | #4 | ||
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I have been on Cellcept since September 2013. I am taking 500 mg three times a day. I have not had any side effects and my lab work has been perfect. I started feeling better within 6 months.
Currently, the heat and humidity has been causing more shortness of breath and fatigue. I really hate summer Good luck to you Sandy |
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"Thanks for this!" says: | Panorama (08-12-2014), pingpongman (08-12-2014) |
08-12-2014, 09:54 PM | #5 | |||
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08-13-2014, 01:47 PM | #6 | |||
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I was on Cellcept for 10 years - started at 1500 mg/day and gradually increased to 3000, Never had any side affects and my blood work was great. After a major crisis in 2010, I switched to Imuran because it didn't seem the Cellcept was working as well as it had been working. Also did a year of Cytoxan infusions which I give credit for helping stabilize me to the point I am at now. Am currently on 200 mg Imuran/day.
Good luck! |
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