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Old 08-13-2014, 01:54 PM #4
AnnieB3 AnnieB3 is offline
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Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Smile

I wasn't being critical, but utterly silly! Guys can rib guys, but when a woman does it . . .

I think all of us wish that we could—while we're feeling completely vulnerable and sick—have a retort as splendid as yours.

I've always been pleasant with neurologists as well, when they clearly didn't deserve it. I consider what I went through with many of them to be a medical version of a Kobayashi Maru.

How would you respond to a doctor who kept a positive antibody test from you, which severely affected both your care and your life? And when you found that out seven years later, the clinic denied that it existed? That's only a small bit of what I've gone through.

No doctor told me either that heat made MG worse; only a couple of women on a different forum years ago did that. That's when I did the research in order to figure out WHY (extremes of heat, and cold, increase acetylcholinesterase).

If this neuro can't handle a little debate (much better term than pissing contest, but, again, I was being silly), then he should be required to see a psychiatrist to work on his ego. My dad was a debate coach, so I enjoy a lively conversation. But why should we patients have to go to those lengths to simply have care that we pay for?

There are very few neuros who tell MG patients how to manage MG. The one in Florida goes so far as to have group meetings with MG patients to discuss all things MG. How cool is that?

I honestly don't think many doctors think about their patients. They're thinking about themselves and how to avoid a lawsuit. It's a pretty sick legalistic paradigm they work in. I'm sorry that you were not warned about the MANY things that can make MG worse, such as stress while seeing a doctor.

There is absolutely no excuse for a physician to be a total jerk, or to put down their patient by rolling their eyes, doubling their entendres, ignoring their rights, or destroying their lives. And, yet, they keep on doing that and more.

Even the abduction of your fractal genius was an abuse of power. That's why so many people with gifts keep them quiet, so they won't be on the receiving end of the "robots in black." (It would be an insult to men to call them "men in black.")

There's no place in medicine—or life—for abusive behaviors, no matter how cloaked.

Annie
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"Thanks for this!" says:
angell (08-13-2014), Heat Intolerant (08-14-2014), rach73 (08-16-2014), sandy56 (08-13-2014)
 


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