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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-05-2014, 09:13 PM | #1 | ||
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Hi all,
I haven't been posting much but checking in often to see how everyone is doing. Some of you may remember that I had to cancel a planned trip to Italy last May when I got my diagnosis. I am happy to say that I just got back from 3 1/2 weeks traveling around Italy and had a great time. I was on a pilgrimage to Rome and several monasteries in Umbria and Tuscany. I managed climbing stairs and navigating hilly cobblestone town streets that seemed to be everywhere. I had a rough day here and there but was able to do everything I wanted. The cooler weather there was awesome. I had been having trouble breathing the last few months in the horrible Florida summer weather. I had to have a full cardiac work up and PFT's before I could go. The tests were ok so my doctor felt the heat/humidity was making my breathing muscles weak. I had gotten a new puppy at the end of June and was taking her out every hour or two. He thought getting out of Florida would help me. I am grateful to be able to feel somewhat normal again and do something I love Wishing you all more good days, hang on to those dreams and aspirations. Sandy |
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10-06-2014, 02:57 PM | #2 | |||
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"Thanks for this!" says: | southblues (10-06-2014) |
10-06-2014, 07:54 PM | #3 | ||
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Grand Magnate
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Way cool!!!! So glad you got to go, and it probably worked out better than it would of had originally.
Annie |
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"Thanks for this!" says: | sandy56 (10-07-2014) |
10-07-2014, 09:08 AM | #4 | ||
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10-07-2014, 09:36 AM | #5 | ||
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"Thanks for this!" says: | Panorama (10-07-2014) |
10-07-2014, 04:47 PM | #6 | |||
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Sandy,
Nice pictures. I didn't know you know the Pope. I hope you put a good word in for us. Here is a quick link to your album, to make it easier for the others to find: http://neurotalk.psychcentral.com/album.php?albumid=676 -Mark- Last edited by Panorama; 10-07-2014 at 05:07 PM. |
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"Thanks for this!" says: | sandy56 (10-08-2014), southblues (10-07-2014) |
10-07-2014, 09:04 PM | #7 | |||
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Sandy, I am so glad for you, but I am also so jealous. I have not had a vacation in a long time. I did not know how I could manage the walking. But I was talking to my daughter yesterday and said we should go to Scotland & England this summer, It may be my last chance at a vacation with her. She goes to college soon. I think I would do better with my breathing in a cooler environment.
It frightens me to think how I will manage the walking but I think I need the break no matter the risk. Thank for the incentive kathie |
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"Thanks for this!" says: | sandy56 (10-08-2014) |
10-07-2014, 09:35 PM | #8 | |||
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Rent one of those mobility scooters. Here is a link to MobilityGIANT located in England: Included in our rental service you get fully Comprehensive insurance and Breakdown Cover, 24 Hour Helpline as well as all maintenance taken care of leaving you nothing left to worry about.http://www.mobilitygiant.co.uk/shop/mobility-scooter-hire It will be physically less demanding for you, and take the worries away from your daughter. -Mark- Last edited by Panorama; 10-07-2014 at 10:36 PM. |
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10-08-2014, 04:01 PM | #9 | ||
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I was not doing well in the Florida heat/humidity prior to my trip. I was really not sure how well I would do but decided to "go for it". My husband was prepared to help me as much as possible. I took a cane, my O2 monitor and extra mestinon. I am so glad I went, the cool weather was great. Now that I am back in Florida, I am not doing so well. It was totally worth it. Hope you decide to go Sandy |
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"Thanks for this!" says: | cait24 (10-08-2014) |
10-08-2014, 04:03 PM | #10 | ||
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"Thanks for this!" says: | cait24 (10-08-2014) |
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