Hello everyone, i've been experiencing a myriad of 'odd' neurological symptoms over the last month, but it wasn't until ER visit #5 with breathing difficulty that i've become officially scared. A little less than a month ago I started experiencing a profound weakness in my left hand. My left hand became fatigued very quickly after little effort such as filling out paperwork, or driving a short distance. This weakness was accompanied with some profound pain in the tendons of my fingers and I figured I just had a bought of tendonitis since I spend a good amount of my daily life on the computer. My hand would 'feel better' after rest and then get fatigued and painful again incredibly quickly. This continues to be a problem 1 month later.
Shortly after the hand weakness/fatigue started the fasciculations and cramps started. My right calf in particular would ball itself slowly into a cramp that lasted days before finally releasing. First it was 12 hours, 2 days, and then 4 days. This was incredibly painful. This along with constant unrelenting fasciculations in my legs and feet. My left leg at night is like an 'electrical storm' popping and cracking and twitching all night long. Shortly after this the 'scary' symptoms began. I was up late one night and all of a sudden I got this incredible 'tiredness' in my tongue. Like I had been licking an icecream cone nonstop for hours though my tongue was sitting in my mouth unused. This too comes and goes in bouts with no explanation. One moment my tongue and mouth feel 100% refreshed and then within a few sentences become 'exhausted and weak' as if I had talked for hours. I saw my GP and she said it sounded like anxiety to which she prescribed Ativan. Shorty after taking them the fasciculations in my legs almost completely disappeared; still some occasional cramping and twitching but literally -90% of what it was. The only problem is that the fatigue issue in my tongue and hand is still present and the bouts are becoming more and more frequent.
Finally 5 days ago, I had what I thought was a 'heart attack' I woke up out of breathe and by mid day was gasping for air. I eventually realized that I wasn't going to be able to breathe much longer and called 911. They rushed me to the ER with me still gasping for air and did an EKG thinking I had a heart attack. The EKG was clean, they ran a number of tests including blood test and CT to see if I perhaps had a pulmonary embolism; all tests returned normal with the exception of there showing an abnormality with my thyroid. They ruled my visit as a 'panic attack' and sent me home saying that I needed to calm down. I believed them, until it continued to happen. I would be just sitting there calm as can be and all of a sudden feel like my lungs were heavy bowling balls that were heavy to lift and i'd begin to realize that my breaths are no longer 'satisfying' my need for oxygen. I've been to the ER 4 times in the last 5 days with these 'breathing episodes' and frankly they are sick of me over there. One nurse said to me last night 'what do you think we are? a pharmacy? ****!' even though i've only been given pain medication once in my 4 visits. I don't feel welcome at my local ER anymore and a afraid that the next breathing episode may be so bad that I die. I currently have a refferal to a neuro in the works but have to just wait for it to be approved. While consulting DR google on my symptoms, MG sounded like it fit me the best and I while I wait for my appointment i'm hoping that one of you wonderful members of this forum
might has some insight for me of whether or not this sounds like MG or perhaps something else that is more obscure. Thank you
-Mike