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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Grand Magnate
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I have no idea if they'll take those lots off of the market (they did not say during our long conference call), but they did show signs of "getting" why taste (and smell) matter in a product such as this, particularly when they promised a raspberry flavor and that's not what was in those lots.
Besides, what myasthenic can swallow something so horribly pungent? Kind of makes the whole point of needing to have a syrup moot, especially for children. Perhaps they should hire someone with MG to do quality control tasting and smelling of their Mestinon Syrup lots. ![]() This has been an exhausting, and annoying, process, but at least it had a good outcome. I've asked for the conclusions of the examination of the product, but who knows if I'll get the truth. Annie Last edited by AnnieB3; 12-06-2014 at 08:45 AM. |
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