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Old 12-15-2014, 06:09 PM #1
AnnieB3 AnnieB3 is offline
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AnnieB3 AnnieB3 is offline
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Ditto on seeing a hematologist. Don't "guess" with a low white blood cell count, especially one that is showing a "trend" of going downward!

Do you take B12 (methylcobalamin) daily?!

Annie
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bny806 (12-16-2014)
Old 12-16-2014, 09:08 PM #2
bny806 bny806 is offline
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bny806 bny806 is offline
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Thanks yall!! My rheumatologist called back today.. said we should repeat it in 2-3 weeks to see where it is.. she said it could be the IVIG or just a sign of worsening autoimmune syndrome.. Since it's been a downward trend with my wbc, hb and hct for the past 6 months, I'm pretty sure in 2-3 weeks it won't be suddenly better!
From what I have read IF it's the IVIG causing the leukopenia that should only be transient (less than 24 hours).. I have had labs weeks after IVIG showing th.e same trend, though this draw was at the end of my infusion last week. She said if it's still abnormal then, they will run more tests

Yes Annie - I take methyl B12 5000 daily, i have the shots too, but they are cyano, so I don't take those.. my MCV is usually upper 80's or low 90's.. Before I was sick my WBC was always over 8, and Hb/Hct was NEVER EVER anemic... I am nervous with all the flu around that with a low WBC i am gonna catch something bad...
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