[huntress]

Hi all, I had my 5 IVIG's, the first one was March 5th the last 5th IVIG I had on March 12th. So far they have worked wonder's on the MG. I feel so much better, stronger. My vision is messing up a bit...Up until today I've felt good. Now my womanly menstrual cycle is about to hit, could that be the reason for the droopy eye today? And the feel of the bit of weakness? Because boy if those 5 IVIG's lasted a week, it isn't good. lol....So ladies here, even with IVIG do your symptoms flare more even with IVIG during that time of the month?

Thanks so much

Lisa

[Needananswer]

So glad you found some relief and I hope it lasts! For the record, I major league flare w my cycle. It really sends me into a tizzy with the ptosis.

[southblues]

Some women take birth control pills that only allow 4 periods a year. I wonder if that would help.

[bny806]

Oh yes!!!! I feel like I got my face botoxed starting 3 days premenstral... it's awful! but hey - no need to track my cycle or anything, as I always can tell due to my symptoms when I'm about to start - it's like clockwork 3 days before. and usually 2 days into it my symptoms are much worse.. and then things start to get better... I still flare like that even on IVIG.. it's great when IVIG is timed to really kick in at its best during that time of month... fun times!

[rockenmama]

Originally Posted by bny806

Oh yes!!!! I feel like I got my face botoxed starting 3 days premenstral... it's awful! but hey - no need to track my cycle or anything, as I always can tell due to my symptoms when I'm about to start - it's like clockwork 3 days before. and usually 2 days into it my symptoms are much worse.. and then things start to get better... I still flare like that even on IVIG.. it's great when IVIG is timed to really kick in at its best during that time of month... fun times!

I know this is old but omg day 2 of my first IVIg in hospital and AF reared her ugly head I am on day 4 of IVIg now